In order to organize our links to make
them more useful, they have been divided into categories. Please select
from one of the categories on the left.
Indiana Specific Resources
ARC of Indiana - http://arcind.org
Cleft Lip and Palate Association - (219) 426-1258
Face to Face - (317) 257-9633
First Steps - http://www.state.in.us/fssa/first_step/index.html
Indiana Down Syndome Foundation - http://www.indianadsf.org
Indiana Family Helpline - http://www.in.gov/isdh/programs/mch/ifh.htm
Indiana Genetics Information Center -
http://genes-r-us.uthscsa.edu/resources/genetics/StatePages/Indiana.htm
Indiana Milk Bank (breast milk donation) - http://www.immilkbank.org/
Indiana Parent Information Network - http://www.ipin.org
Indiana State Deparment of Health - http://www.in.gov/isdh/
Indiana Resource Center for Autism - http://www.iidc.indiana.edu/~irca
INHealth Connect -
http://apps.nlm.nih.gov/medlineplus/local/indiana/homepage.cfm?areaid=13 Neofight - http://www.neofight.org/
Spina Bifida Association of Central Indiana
- (317) 592-1630
Trisomy Listening Connection (TLC) - (317) 889-1418
National Resources
American Board of Genetic Counselors - http://www.abgc.net
National Society of Genetic Counselors - http://www.nsgc.org
Center for Disease Control and Prevension - http://www.cdc.gov/
eMedicine - http://www.emedicine.com
GeneTests / GeneReview - http://www.genetests.org
Genetics and Rare Conditions Site - http://www.kumc.edu/gec/support/
Genetic Disorders and Birth Defects Information Center -
http://geneinfo.medlib.iupui.edu/
March of Dimes - http://www.marchofdimes.com
MedlinePLus (Genetics Page)-
http://www.nlm.nih.gov/medlineplus/geneticsbirthdefects.html
OMIM (Online Mendelian Inheritance in Man)-
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM
National Support Resources for Parents/Siblings
Genetic Alliance - http://geneticalliance.org
MUMS (National Parent-to-Parent Network) - http://www.netnet.net/mums/
Sibshops - http://www.thearc.org/siblingsupport/sibshops-about
Click HERE for Sibshops
in Indianapolis, IN
S.O.F.T.
- Support Organization For Trisomy 13, 18, an Related Disorders - http://www.trisomy.org/
The
National Organization for Rare Disorders - http://www.rarediseases.org
Waiting with Love - http://www.erichad.com/wwl/
National Resources on Specific Conditions
Muscular Dystrophy Association - http://www.mdausa.org
Muscular Dystrophy Family Foundation - http://www.mdff.org
National Fragile X Foundation -
http://www.fragilex.org/html/home.shtml
National Marfan Foundation - http://marfan.org
Little People of America - http://www.lpaonline.org/
Little People of America District V (Midwest)-
http://www.geocities.com/patonly/lpadistrict5.html
National Grief and Loss Support Organizations
National SHARE Office - http://www.nationalshareoffice.com
The Compassionate Friend, Inc. - http://www.compassionatefriends.org
Other
Center for Disease Control/Genomics and Disease Prevention -
http://www.cdc.gov/genomics/hugenet/
Clinical Trials.gov (provided by National Institutes of Health) -
http://clinicaltrials.gov/
ICD9 codes - http://icd9coding1.com/
CEU Option for Genetic Counselors - Click HERE
|
